Growth, Fear, and Living Authentically
This year I started with a clear intention: “Doin what I want.”
Truth be told, I lost the plot for a little while. I wasn’t satisfied with the way I was living. I found myself sitting at home feeling unchallenged and unfulfilled because I had started playing small.
I stopped sharing my real-life, watered down my truths, and slowly pulled back from showing up the way I once did. I turned down opportunities of a lifetime because I was fearful. I forgot that I create my own reality.
Well… if you don’t like something, change that shit.
That’s exactly why this year I’ve been “Doin what I want.” I’m protecting my energy and saying yes to meaningful opportunities. I’m talking my shit, and taking it back to the basics and sharing what started Ashley’s Anatomy… the writing.
So I’m sharing again. Through writing.
I’m No Worker Bee
If you know anything about me, you know I hate working for other people. It’s always a struggle going from being your own boss to cosplaying as a worker in a traditional 9–5. I usually take contract positions because they offer more flexibility, perfect for people with questionable attendance like me.
Maintaining a conventional job has always been hard for two reasons: I hate anyone telling me what my schedule is, and working a job can seriously stifle my creative energy. It’s hard to create when you’re tired as hell.
That’s exactly what I’ve been experiencing lately. Between work and the chronic fatigue that comes with living with Myasthenia Gravis, I’ve been worn down. And on top of that, Ashley’s Anatomy is a whole ass business in itself: meetings, brand emails, and the constant work of creating and maintaining content.
If you’ve noticed, I haven’t been as active in my Ashtrology Shop either. New products are in the making, I promise.
By the end of the week, I’m exhausted. Most weekends are spent recovering, only for me to realize I didn’t record or post last month’s newsletter because I was too tired to write.
I have been working as a contractor for a hospital remotely since September and was recently offered a full-time position (YAYYYYYYY!). Is it weird to say I wasn’t super ecstatic? It meant starting the whole process of requesting workplace accommodations. Necessary for job security with MG, but definitely a headache.
I’ll keep y’all posted on how the process goes, but your girl has a full-time job with benefits now.
Stabbing Myself in the Thighs Every Day
After eight years of receiving IV infusion treatments, I recently switched to a self-injection medication. It wasn’t a decision I made lightly. In fact, I wrote about the experience for WebMD; you can read it here: How Changes in My MG Meds Affect Me.
One thing I consistently noticed with my IV treatments was that the effects would start to wear off a few weeks before my next infusion. That gap made a real difference in my schedule and in how many “usable” days I had each month.
So my neurologist started asking me: what if there was a medication with a similar mechanism to the one I’m already on, but without that drop-off between treatments? It sounded ideal, so I decided to give Zilbrysq a try.
I won’t lie, the idea of stabbing myself in the stomach or thighs every day made me nervous. I’ve had surgeries, countless IVs, and I’ve even helped save a few lives in my time in healthcare, but the thought of putting a needle into my own body gave me pause.
I’m only on day three (3/12/2026) of the injections (currently going with the thighs), but I’ll be sharing a more detailed update soon. One thing I can tell you already, though: I’m definitely not a fan of stomach shots.
What’s to Come for AA
I have a few upcoming interviews and opportunities focused on community building for my fellow MG’ers, and I’m really excited about sharing some loc and makeup product reviews. One thing I’ve learned on this journey is that none of us is meant to navigate chronic illness alone. I want to continue sharing stories, resources, and real conversations.
I invite you to follow along and keep up with updates over on Instagram at _ashleysanatomy. There’s more writing, more conversations, and more community coming soon, and I’m grateful you’re here for it.
Let’s Stay Connected 💫
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